Tag: March

Endometriosis

It’s not always Endometriosis but sometimes it is.

I’m an Black woman from the Midwestern United States who happens possess multiple educational degrees and I happen to have Endometriosis.

Many of you may realize that endometriosis was coined as the career woman’s disease so when I was diagnosed prior to becoming a teenager; I just knew the diagnosis was wrong!

How could I have a career woman’s disease when I was not remotely a woman yet and I did not have a career? At the time of diagnosis I did not even have a high school education.

Unfortunately or fortunately depending on how you look at it, my diagnosis was accurate. I had and still have Endometriosis.

I was happy to know the name of the collections of symptoms I was experiencing; however, nearly immediately I was distraught by the lack of a cure available.

Years later I found out that it wasn’t just Endometriosis, but that’s another story.

Awkward Times in my Life with Endometriosis

That’s certainly Awkward! It’s March, time to pull out my yellow ribbons and raise awareness for this disease called Endometriosis but

I’m Too tired from a seemingly never-ending endometriosis flare to raise awareness during Endometriosis Awareness month!

Oh I know something else that’s really awkward

A well meaning person suggested I try a particular treatment…hmm do I tell them that I a) tried the treatment, b) the side effects of a previously tried treatment means I no longer qualify for said treatment, or c) that the treatment goes against my plans

Oh yeah let’s not forget those people who suggest I have a hysterectomy or a child. I always wonder should I tell them how there’s no cure for Endometriosis even if you do hear about celebrities managing symptoms using certain measures.

That awkward moment when someone questions why I’m having symptoms when I was menstruating two weeks ago.

That awkward moment when someone with Endometriosis questions why our symptoms are not the same.

That awkward moment when someone tries to say Endometriosis.

Really, the word is a mouthful!

I know a lot about my dilemmas with Endometriosis and I have a lot of general knowledge about the disease; however, if there’s anything I’d stress about Endometriosis it is that the disease presents differently in everyone…

Be Aware but please try not to Be Awkward

Endometriosis…beginnings 

I felt the presence of endometriosis in my body during my SECOND EVER menstrual period, I was nearly 12. Once I turned 12, I started my first set of birth control pills in an effort to address the menstrual related problems I was having…birth control pills didn’t help so I was referred to a gynecologist. In the referral documents, the pediatrician suggested endometriosis as my potential ailment.

I was so young at the time so the gynecologist tried a few other birth control pills and patches before deciding on the exploratory surgery. The surgery would confirm or deny the suspected diagnosis of endometriosis.

I was 14 when it was surgically confirmed that I indeed had a pretty bad (in terms of location and size of lesions) case of endometriosis.

For a moment, I was relieved…there was a medical reason for why I missed so much school and missed out on hanging with my peers that was no longer a mystery, it was endometriosis.

Then I remembered that my doctors told me that endometriosis had no cure. My relief flew out the window because now with diagnosis, I was the sick one.

Before the diagnosis I was just an adolescent who didn’t like school and made “excuses” not to go or to leave early in the day. After diagnosis, I had an incurable disease and no guaranteed surgical or medical relief. 

Endometriosis officially made me the sick one…as an adolescent this was torture.