Tag: endometriosis awareness

Get Better

Hello everyone, I’m sure you’ve heard of Leslie Mosier’s Get Better well if you haven’t take a listen and purchase a copy of it! All proceeds to support Endometriosis awareness.

Endometriosis is hard to deal with and awareness is key to improving treatment.

I’m all for supporting causes that help others. Even if you are one of the few people who do not like the song, add it to your library for good measure.

Endometriosis

It’s not always Endometriosis but sometimes it is.

I’m an Black woman from the Midwestern United States who happens possess multiple educational degrees and I happen to have Endometriosis.

Many of you may realize that endometriosis was coined as the career woman’s disease so when I was diagnosed prior to becoming a teenager; I just knew the diagnosis was wrong!

How could I have a career woman’s disease when I was not remotely a woman yet and I did not have a career? At the time of diagnosis I did not even have a high school education.

Unfortunately or fortunately depending on how you look at it, my diagnosis was accurate. I had and still have Endometriosis.

I was happy to know the name of the collections of symptoms I was experiencing; however, nearly immediately I was distraught by the lack of a cure available.

Years later I found out that it wasn’t just Endometriosis, but that’s another story.

Awkward Times in my Life with Endometriosis

That’s certainly Awkward! It’s March, time to pull out my yellow ribbons and raise awareness for this disease called Endometriosis but

I’m Too tired from a seemingly never-ending endometriosis flare to raise awareness during Endometriosis Awareness month!

Oh I know something else that’s really awkward

A well meaning person suggested I try a particular treatment…hmm do I tell them that I a) tried the treatment, b) the side effects of a previously tried treatment means I no longer qualify for said treatment, or c) that the treatment goes against my plans

Oh yeah let’s not forget those people who suggest I have a hysterectomy or a child. I always wonder should I tell them how there’s no cure for Endometriosis even if you do hear about celebrities managing symptoms using certain measures.

That awkward moment when someone questions why I’m having symptoms when I was menstruating two weeks ago.

That awkward moment when someone with Endometriosis questions why our symptoms are not the same.

That awkward moment when someone tries to say Endometriosis.

Really, the word is a mouthful!

I know a lot about my dilemmas with Endometriosis and I have a lot of general knowledge about the disease; however, if there’s anything I’d stress about Endometriosis it is that the disease presents differently in everyone…

Be Aware but please try not to Be Awkward

March is Endometriosis Awareness Month

In the United States and abroad, Endometriosis is starting to be recognized as a disease that affects millions of individuals.

I recall the first time I heard a commercial about endometriosis on television; this gave me hope. Hope that the millions of individuals impacted by this disease would start seeing treatments available and more importantly they would receive a diagnosis sooner.

There’s still a long way to go but I’m encouraged that endometriosis is becoming a recognized disease. Learn about Endometriosis and the Endometriosis Association

Endometriosis Fears

Being diagnosed with endometriosis in my adolescence was a blessing and a curse. I was glad to know that there was something wrong and it had a name. I was excited because I finally knew that I did not make up the pain; it was definitively real…with a name.

It didn’t take long for me to receive my diagnosis, considering that many individuals go years without a proper diagnosis. Endometriosis was always the suspected diagnosis from the very first time I experienced pain. The only delay in diagnosis was due to my age, my doctor didn’t want to subject me to an unnecessary surgery. We waited 1 1/2 years before surgery while trying oral contraceptives and so I could become an “official” teenager.

Once the official diagnosis came it was also a curse because I instantly developed fears about my future fertility and my future career.

I automatically assumed I was infertile and that NO man would want a woman who couldn’t bear his children. After reading information about endometriosis – most of which was provided by or recommended by my physician; I feared that I would never have a successful career either.

These thoughts, fears were compounded by my very premature mind, I was only a teenager – barely -and I tried to deal with a very mature problem. I wasn’t dying, but I often felt like dying was a far cry better than living In constant pain.

Today, I’m learning to put the brakes on as far as my fertility and career goes. No reason to worry about things that are not at the forefront. I’m currently working toward the career that I’ve always wanted and I’ve never tried to conceive so who knows what the future holds

Endometriosis…beginnings 

I felt the presence of endometriosis in my body during my SECOND EVER menstrual period, I was nearly 12. Once I turned 12, I started my first set of birth control pills in an effort to address the menstrual related problems I was having…birth control pills didn’t help so I was referred to a gynecologist. In the referral documents, the pediatrician suggested endometriosis as my potential ailment.

I was so young at the time so the gynecologist tried a few other birth control pills and patches before deciding on the exploratory surgery. The surgery would confirm or deny the suspected diagnosis of endometriosis.

I was 14 when it was surgically confirmed that I indeed had a pretty bad (in terms of location and size of lesions) case of endometriosis.

For a moment, I was relieved…there was a medical reason for why I missed so much school and missed out on hanging with my peers that was no longer a mystery, it was endometriosis.

Then I remembered that my doctors told me that endometriosis had no cure. My relief flew out the window because now with diagnosis, I was the sick one.

Before the diagnosis I was just an adolescent who didn’t like school and made “excuses” not to go or to leave early in the day. After diagnosis, I had an incurable disease and no guaranteed surgical or medical relief. 

Endometriosis officially made me the sick one…as an adolescent this was torture.