Category: endometriosis

Stress induced flare

Ok so here’s the deal, in less than 10 days my dissertation defense will happen and my angst is high

I’m not nervous about what I know as it pertains to my dissertation; but I’m concerned about the what’s next questions that are flooding my mind

This is bad because the illnesses that reside in my body react badly to stress…really bad.

My thoughts are jumbled; I’m frustrated and I’m ready to scream

I must find a way to calm my mind and balance myself.

I must relax or else I won’t make it through my dissertation defense because I’ll be nursing a flare.

Why are my illnesses stress- sensitive ?

Chronic illness identity

Chronic illness warrior, chronic pain survivor, spoonie, chargie, dis-Abled, fighter, and all of the other labels used among individuals who face a myriad of long term illnesses….

It matters little how I refer to myself when I’m at a place where I feel there’s nothing I can do to overcome, conquer whatever my illness has brought to me.

The labels tend to carry little meaning when I’m facing the implications of my illness alone

They matter even less when I’m sitting in yet another physicians or alternative health professionals office and/or waiting room…

So why do I find such comfort in whatever label I choose for the day? Although it seemingly doesn’t change the trajectory of my chronic illness or the acknowledgment of my pain by others?

These labels may have little meaning outside of the communities they create which often transcends an individual’s immediate surroundings.

These labels thrive in cyberspace and it’s easy to see how certain events in the real world are crafted around these labels.

Personally, I’ve found them useful in cyberspace and I’ve enjoyed the disconnect in the connections I’ve created through these labels.

I consider it a disconnect because I only checked into these communities when I felt the desire to…otherwise, I stayed away.

Some years, I was connected to various chronic illness themed communities on a daily basis…I was even an administrator of one such community at one point

But once I received what I needed or at least once my outside support system stabilized, I relied on the amazing community less.

Now, I’m not a part of any particular community of chronic illness individuals. At times, I miss the relational aspects of the communities, I miss the feeling of being a part of something bigger, the feeling of not being alone…but for the most part I don’t miss it enough to immerse myself into any of these communities again.

It became overwhelming as I shared my story, my experiences with so many who could relate…it was sometimes overwhelming to witness the pain and suffering many of those individuals in these groups shared.

Now. I’ll mention various chronic illnesses or pains I endure, but I don’t want to be consumed by it anymore.

My illnesses impact every facet of my life daily…but my needs are different than they were years ago when I had to plug into the communities to maintain a semblance of sanity.

I’m forever grateful for the groups and the amazing people I’ve had a chance to interact with throughout the years of my intense involvement.

The Memo

The chronic illness related pain failed to read and/or comprehend the memo which stated:

To Whom It May Concern:

The deadlines are fast approaching and must be met. There’s no acceptable excuses for said person to miss these deadlines. Reasonable accommodations were made and any extensions beyond those suggests that said person is unable to adequately perform the tasks.

Signed,

The Deadline Committee

Well, back to the chronic illness related pain that failed to read and/or comprehend the memo and decided instead to flare when I (aka said person) desperately needed to write in order to meet the deadline committee’s demands.

Clarity statement: NO committee or individual gave me such a deadline notice…IRL

Flares

Flares – how appropriate is this word for the unpredictable, destructive way endometriosis and similar chronic pain disorders interrupt your life.

Like a flare of fire even if you avoid looking at it, the heat still makes it known. With endometriosis I often refuse to pay attention to the outrageous pain…yet it continues.

(more…)

Not again…The reality of finding physicians

Since my childhood I’ve managed to have really good, attentive physicians…this was priceless since I had many mysterious and/or chronic ailments.

Even at birth, I required specialized medical care.

Well, I’m an adult now – my childhood and teenaged years , and twenties are things of the past now.

I’m in one of what will likely be many awkward transition phases of life. The place I’m at now is not my home and I’ll likely be somewhere else next year this time.

That brings me back to doctors! As I’ve expressed before I have endometriosis and several of its sister/cousin ailments…my body also possesses some unlikely ailments.

In the ideal world I would be managing these ailments under the care of a physician…but in my reality, I haven’t went to a physician in months

I spent a lot of time at doctors’ offices and in waiting rooms…so now I’m more hesitant about going and I’m more willing to suffer in silence.

Trust me I know this isn’t smart but I’m tired of doctors. I don’t want to build rapport with anyone, let alone another physician

Especially since this relationship will be short lived

The problem is that endometriosis and the various ailments are getting the best of me.

I don’t know how to start finding a good doctor…my last doctors just kind of feel into my lap and they were wonderful

Due to my latest relocation and insurance network – going to these physicians is impossible.

How do I motivate myself to find a doctor to treat the ailments I’ve been suffering unnecessarily with?

Is it even worth it to start another relationship with another doctor ?

Endometriosis complications 

If I had my way I wouldn’t have endometriosis, who would ever if given the choice? But I do have endometriosis and it has impacted every area of my life. I appreciate hearing about people who accomplished societal success, all while having endometriosis, but I’m also saddened by this news because I start judging myself harshly….what have I accomplished? How can I blame endometriosis for some of my success shortcomings when that individual I’m reading about has accomplished so much while having the same disease? 

So to get myself out of my conflicting thoughts I read about how endometriosis impacts everyone differently and blah, blah, blah. This works momentarily, until I read about someone with some other life altering illness who is successful according to society’s standards. Then the self judgment starts again – what is my excuse? I’m just a failing failure.

Ok so I know that this line of reasoning is unreasonable and utterly ridiculous but in that moment when I am judging myself so harshly for how I’m comparing my plight with someone else’s, this reasoning feels like the truest truth I’ve ever told myself.

I was diagnosed with endometriosis nearly two decades ago but it’s no easier to handle now than it was when I was a scared adolescent thinking I had some terminal illness in my stomach.

One thing I know for certain is that the quickest road to depression is to compare yourself to another. 

I’ll never be thankful for having endometriosis but I am grateful for the lessons I’ve learned while dealing with this horrible disease. I believe I could’ve learned these lessons another less humiliatingly painful way but I didn’t choose the body I was born into or the diseases that occupied it