Category: endometriosis

Symptom Checker

Sometimes I use the internet to search my symptoms…the internet loves to inform me that I have Endometriosis!

Sadly I am always bummed to find that the internet suggests I have Endometriosis. Not because I’m desperately seeking a diagnosis; but Endometriosis?

I’m so tired of Endometriosis! I was diagnosed with Endometriosis definitively 19 years ago and it was suspected 21 years ago! In my mind, Endometriosis should’ve matured and moved out of my body after all of this time!

Ok I am joking but my internet searches are supposed to come up with some curable, easily managed ailment – not Endometriosis!

Get Better

Hello everyone, I’m sure you’ve heard of Leslie Mosier’s Get Better well if you haven’t take a listen and purchase a copy of it! All proceeds to support Endometriosis awareness.

Endometriosis is hard to deal with and awareness is key to improving treatment.

I’m all for supporting causes that help others. Even if you are one of the few people who do not like the song, add it to your library for good measure.

Endometriosis

It’s not always Endometriosis but sometimes it is.

I’m an Black woman from the Midwestern United States who happens possess multiple educational degrees and I happen to have Endometriosis.

Many of you may realize that endometriosis was coined as the career woman’s disease so when I was diagnosed prior to becoming a teenager; I just knew the diagnosis was wrong!

How could I have a career woman’s disease when I was not remotely a woman yet and I did not have a career? At the time of diagnosis I did not even have a high school education.

Unfortunately or fortunately depending on how you look at it, my diagnosis was accurate. I had and still have Endometriosis.

I was happy to know the name of the collections of symptoms I was experiencing; however, nearly immediately I was distraught by the lack of a cure available.

Years later I found out that it wasn’t just Endometriosis, but that’s another story.

Awkward Times in my Life with Endometriosis

That’s certainly Awkward! It’s March, time to pull out my yellow ribbons and raise awareness for this disease called Endometriosis but

I’m Too tired from a seemingly never-ending endometriosis flare to raise awareness during Endometriosis Awareness month!

Oh I know something else that’s really awkward

A well meaning person suggested I try a particular treatment…hmm do I tell them that I a) tried the treatment, b) the side effects of a previously tried treatment means I no longer qualify for said treatment, or c) that the treatment goes against my plans

Oh yeah let’s not forget those people who suggest I have a hysterectomy or a child. I always wonder should I tell them how there’s no cure for Endometriosis even if you do hear about celebrities managing symptoms using certain measures.

That awkward moment when someone questions why I’m having symptoms when I was menstruating two weeks ago.

That awkward moment when someone with Endometriosis questions why our symptoms are not the same.

That awkward moment when someone tries to say Endometriosis.

Really, the word is a mouthful!

I know a lot about my dilemmas with Endometriosis and I have a lot of general knowledge about the disease; however, if there’s anything I’d stress about Endometriosis it is that the disease presents differently in everyone…

Be Aware but please try not to Be Awkward

March is Endometriosis Awareness Month

In the United States and abroad, Endometriosis is starting to be recognized as a disease that affects millions of individuals.

I recall the first time I heard a commercial about endometriosis on television; this gave me hope. Hope that the millions of individuals impacted by this disease would start seeing treatments available and more importantly they would receive a diagnosis sooner.

There’s still a long way to go but I’m encouraged that endometriosis is becoming a recognized disease. Learn about Endometriosis and the Endometriosis Association

Rest required

I have a few chronic illnesses, some that I’ve written about in the past…it doesn’t matter what they are, just know that they exist and they impact every facet of my life.

I recently defended my dissertation (Yay Me!!!) now it is time to focus on job hunting (Why me?) and this is where chronic illness is front and center.

So I’ve lived with these chronic illnesses for many years and I’ve achieved my educational goals…although things never went smoothly…and now I’m exhausted

I have important people to contact, cover letters to compose, and applications to complete…but I’m tired.

I’m not only tired from the arduous process that is a doctoral program…my chronic illnesses are screaming at me to pause temporarily.

My chronic illnesses are suggesting that I breathe, meditate, then rest. Sigh.

As many of you know, application deadlines and all the many things necessary for getting a job fails to account for the fact that your (my) chronic illnesses demand that I rest.

Some of you may even go so far as to say, if I need rest during the application process, I’m likely not able to do the job for which I am applying.

Then there’s others who would say that the PhD process is tedious and the typical person would need a break, so it’s not unusual that I need a break…in the form of a short rest.

The problem I often face as a result of being chronically ill is that I wonder if I’m being lazy or I really need the rest.

Those closest to me suggest that I simply need the rest, but even that’s not always convincing enough to stop my negative self talk

As someone with chronic illnesses, it is hard enough to deal with some outsider suggesting that you are lazy, incompetent and yet many of us, myself included engage in negative self talk when our bodies demand self-care.

I am someone who possesses chronic illnesses, but I’m also more than that. I am someone who needs accommodations, but I’m also more than that. I am more than any identifier I possess…if only I consistently believed that.